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S3:Ep12 Ashley's Story: How Acceptance Allows for Presence
Manage episode 393551207 series 2793015
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In this episode, we meet Ashley Fish, a first grade teacher, wife, and mother of two. Ashley's road to motherhood took some unexpected turns as her first, Barrett, came early and, after just a few days at home, the family was transported to Missoula to the pediatric ICU to monitor and address respitory challenges. He recovered well but Ashley was left with intense anxiety. During her second pregnancy, Ashley's learned, at her 20 week ultrasound of concerns regarding abnormal brain development in her daughter, Ainsley. Eventually, Ainsley was diagnosed with an extremely rare genetic disorder called Pyruvate Dehydrogenase Complex Deficiency (PDCD). Ashley shares what it's been like for her to surrender control, accept help from those around her in order to keep her and her family well - self-care matters here- and embrace and cherish every moment they have together.
Show Notes:
These are the resources that have been helpful to the Fish family and Ashley highly recommends reaching out to them if you have a little one who needs special care.
The Jadyn Fred Foundation
Montana Hope Project
Children's Flight of Hope
Ronald McDonald House
For statewide resources please visit the Linking Infants and Families to Supports at
https://hmhb-lifts.org/
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