BloodStream is an entertaining and informational podcast for the bleeding disorders community. Each week, hemophilia patient Patrick James Lynch and former non-profit director Amy Board are joined by advocacy leaders, medical experts, and other guests to discuss the latest news, scientific advancements, policy initiatives, and so much more. Subscribe wherever you listen, or search BloodStream Podcast on YouTube to catch every episode there. Produced by Believe Limited. Presenting sponsor: Ta ...
…
continue reading
Cheat Codes is a podcast about sickle cell disease and is intended for patients, caregivers, providers, and the greater community of people who are impacted by it. Each episode of Cheat Codes: A Sickle Cell Podcast strives to provide listeners with critical education, the latest scientific updates, and voices from the sickle cell community. Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram. Cheat Codes: A Sickle C ...
…
continue reading
What do you do when you’ve achieved your dreams only to realize- your work’s just begun? In January of 2018, Chris Bombardier became the first person with severe hemophilia to complete The Seven Summits. It was the end of an adventure, and the start of a whole new chapter in Chris’s life. From the team behind the documentary Bombardier Blood comes a podcast for adventurers, bleeders, and anyone who’s ever chased a dream. Subscribe to BloodStream Media’s The Final Summit wherever you get your ...
…
continue reading
A podcast about evil and complicated queers in history. Why do we remember our heroes better than our villains? Hosted by Huw Lemmey and Ben Miller. Learn more: www.badgayspod.com
…
continue reading
SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast about pyruvate kinase deficiency (PK Deficiency) and is intended for patients, caregivers, providers, and the greater community of people who are impacted by PKD. Each episode, Just Listen: Voices of PK Deficiency strives to provide listeners with critical education, the latest scientific updates, and voices from the PKD community. Learn more about PKD by visiting KnowPKDeficiency.com or connect with KnowPKDeficiency’s on Fac ...
…
continue reading
The PV Pod: Stories from the Marrow is a podcast about Polycythemia Vera (PV) and is intended for patients, caregivers, providers, and the greater community of people who are impacted by PV. Each episode, The PV Pod: Stories from the Marrow strives to provide listeners with critical education, the latest scientific updates, and voices from the community. Transparency Statement: The PV Pod: Stories from the Marrow is produced by Believe Limited and made possible by PharmaEssentia. Visit Pharm ...
…
continue reading
Eosinophils are a type of white blood cell that play a role in immune responses and help fight off infections. When these cells build up and cause inflammation in the digestive system, tissues, organs, and/or bloodstream, without a known cause, it may be the result of an eosinophil-associated disease. Join the American Partnership for Eosinophilic Disorders (APFED) for a series of conversations with researchers, clinicians, patients, and other community members as we discuss practical strate ...
…
continue reading
Thal Pals: The Alpha Beta Revolution Podcast is intended for patients, caregivers, providers, and the greater community of people who are impacted by thalassemia. Each episode strives to provide listeners with critical education, the latest scientific updates, and voices from the thalassemia community. Learn more about thalassemia by visiting RethinkThalassemia.com. Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagra ...
…
continue reading
Ask The Expert from BloodStream Media is a podcast series features hematologists and other healthcare experts answering listener-submitted questions about hemophilia, von willebrand disease, and other inherited bleeding disorders. Learn more at BloodStreamMedia.com. The content contained within Ask The Expert is for informational purposes only. Please consult your health care provider before making any decisions about treatment.
…
continue reading
Content independently created by BloodStream Media. Novartis is our exclusive advertising partner. Introducing "PNH: Facts, Fiction & FYI," a limited series that unveils the enigmatic realm of Paroxysmal Nocturnal Hemoglobinuria (PNH). Join us as we journey through real stories, medical insights, and groundbreaking advancements, offering a comprehensive view of PNH. Explore the lives touched by this rare blood disorder and discover the intersection of facts, fiction, and must-know informatio ...
…
continue reading
Acute pain. Chronic pain. Physical pain. Emotional pain. Psychological pain. Spiritual pain. Pain is a part of life, it’s everywhere, and it can be devastating. There are many tools, techniques, and resources for managing it, but what do we actually understand about pain? The Pain Podcast explores this and other pain-related questions. Subscribe now, and tell a friend about us! Produced by BloodStream Media. Presenting Sponsor: Tremeau Pharmaceuticals.
…
continue reading
Delving deep into the brain and bloodstream of artists, creators and creatives. Join Venus Bleeds, a queer immigrant musician and visual artist discuss physical, mental and environmental systems that affect creativity, and artistic identity with renowned artists from all over the world. This is a show about mental health, patriarchy, feminism, creativity and productivity. We are humbled by the beauty of communication, and the power of sharing each other's voices. What does it mean to be a sl ...
…
continue reading
I am a citizen of this world prepared for the luck that is about to present to me. I strive to create a dynamic ripple through my human bloodstream with focused intent to participate in the manifestation of a world which is kind.
…
continue reading
Welcome to Deep Breaths, a podcast covering topics related to the ANZCA part 2 anaesthetic exam. Now take a deep breath, relax, and enjoy easy to digest content which will supercharge your exam prep, or help you keep up to date.
…
continue reading
Multipure is here to help you learn about better water and better health. Join us as we discuss news, technology, current events, and more, with an eye toward better understanding of water issues, water treatment, health, and safety. Multipure is here to improve the water, health, and lives of you and your family. For Life. For You.
…
continue reading
What is Artificial Intelligence? It's a big part of our daily lives and you want to know. You need to know. But the explanations are so long and boring. Let me give you something short and sweet. Join me, Dr. Peper, for 5 minute, pleasing, and easy to understand flash talks about everything artificial intelligence. Short and Sweet AI.
…
continue reading
1
S9 Ep. 5: Bloodstream, part 1 (Anaesthesia for ruptured AAA repair)
31:27
31:27
Lire Plus Tard
Lire Plus Tard
Des listes
J'aime
Aimé
31:27
Today - in part 1 of our 2 part series - we talk through the case of an 82 year old man with a ruptured abdominal aortic aneurysm who is scheduled for urgent open repair with special guest, Dr Lahiru Amaratunge. Resources for today's episode: BJAED: Anaesthesia for endovascular repair of ruptured abdominal aortic aneurysms by K. Berry et al. LITFL:…
…
continue reading
1
International Plasma Awareness Week, y’all!
38:36
38:36
Lire Plus Tard
Lire Plus Tard
Des listes
J'aime
Aimé
38:36
We recap NBDF’s BDC and welcome back PPTA CEO Anita Brikman to share more about International Plasma Awareness Week. Plus, the latest I’m Fine featuring guest host Michael Bishop. Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Show Notes: Subscribe: The BloodStream Podcast Help celebrate International Plasma Awareness Week! …
…
continue reading
1
From Omaha to Global Health: Dr. Xu's Path in Hematology
48:16
48:16
Lire Plus Tard
Lire Plus Tard
Des listes
J'aime
Aimé
48:16
On this episode, Dr. Z and Dr. C welcome Dr. Julia Xu, a rising star in the field of sickle cell disease. Dr. Xu shares her inspiring journey from Omaha, Nebraska, to her current role at the University of Pittsburgh. The discussion covers her extensive background in global health, her research on anemia in sickle cell disease, and the impactful men…
…
continue reading
1
S9 Ep. 4: Hungry Like the Wolf - update (GLP-1 receptor agonist guidelines)
22:42
22:42
Lire Plus Tard
Lire Plus Tard
Des listes
J'aime
Aimé
22:42
In today's episode, we cover the recently released consensus clinical practice recommendation regarding the peri-procedural use of the GLP-1 and GIP receptor antagonists. Enjoy this topical episode - this is sure to be an evolving area. Feel free to email us at deepbreathspod@gmail.com if you have any questions, comments or suggestions. We love hea…
…
continue reading
1
Treating EoE as an Allergist with Dr. Priya Bansal
55:10
55:10
Lire Plus Tard
Lire Plus Tard
Des listes
J'aime
Aimé
55:10
Description: Co-hosts Ryan Piansky, a graduate student and patient advocate living with eosinophilic esophagitis (EoE) and eosinophilic asthma, and Holly Knotowicz, a speech-language pathologist living with EoE who serves on APFED’s Health Sciences Advisory Council, interview Dr. Priya Bansal about an allergist’s role in treating EoE. In this episo…
…
continue reading
1
Understanding Lab Tests: Hemoglobin and Ferritin Explained – Part 1
26:06
26:06
Lire Plus Tard
Lire Plus Tard
Des listes
J'aime
Aimé
26:06
On this episode hosts NinaMaria Badalamenti and Dr. Kevin Kuo discuss important lab tests for thalassemia treatment. They focus on hemoglobin, explaining its role in oxygen transportation, the significance of trends over specific numbers, and the differences for transfusion-dependent and non-transfusion-dependent patients. They also introduce ferri…
…
continue reading
1
Gary Linehan's Mont Blanc Adventure - Part 2
19:53
19:53
Lire Plus Tard
Lire Plus Tard
Des listes
J'aime
Aimé
19:53
We’re back with Gary Linehan, an avid hiker living with polycythemia vera (PV) to talk about his incredible hike around Mont Blanc. Gary shares his journey, the challenges he faced, and the heartwarming connections he made along the way, emphasizing the importance of living life to the fullest despite a PV diagnosis. Tune in to hear Gary's wisdom, …
…
continue reading
1
Understanding Splenectomy in PK Deficiency
27:34
27:34
Lire Plus Tard
Lire Plus Tard
Des listes
J'aime
Aimé
27:34
On this episode, host Dr. Rachel Grace interviews Dr. Satheesh Chonat, a pediatric hematologist and expert in red cell disorders. They discuss Dr. Chonat’s career path and focus on the complexities of managing anemia in patients with pyruvate kinase deficiency, emphasizing the role of the spleen. They explore why splenectomy might be considered, po…
…
continue reading
1
Inspiration from Circumstance
22:58
22:58
Lire Plus Tard
Lire Plus Tard
Des listes
J'aime
Aimé
22:58
Too often we see inspirational stories as someone who achieved their dream despite something. Despite a setback. Despite a condition. Despite a bleeding disorder. Not today. Chris talks with clothing designer Christian Harris who used his bleeding disorder to inspire his thesis and unique line of clothes… all about the Hapsburgs, and his personal h…
…
continue reading
1
Live at BDC with CEO Phil Gattone!
42:13
42:13
Lire Plus Tard
Lire Plus Tard
Des listes
J'aime
Aimé
42:13
Coming to you LIVE from NBDF’s Bleeding Disorder conference, Patrick is with CEO Phil Gattone right after Opening Session. A walk and talk you don’t wanna miss! Also, hear how HTCs have operationally aligned to administer gene therapy with Zack Duffy and Roland Lamy from the Hemophilia Alliance on the latest Gene Therapy segment. Plus, an interview…
…
continue reading
This week we're under the pump with work and life, but we'll be with you soon and it's a cracker of an episode covering an extremely topical subject. Keep an eye out for our next episode dropping something in the next couple of weeks. As an apology, we'll have a bonus ep coming sometime towards the end of the season! Feel free to email us at deepbr…
…
continue reading
1
Empowering Lives: Dr. Simone Uwan’s Journey with Sickle Cell Disease
41:55
41:55
Lire Plus Tard
Lire Plus Tard
Des listes
J'aime
Aimé
41:55
In this special “Lunch and Learn” session sponsored by the Agios Diversity Council, Dr. Simone Uwan shares her inspiring journey living with and advocating for sickle cell disease. Dr. Uwan discusses her background, achievements in medicine and advocacy, and her personal experiences with misdiagnosis and the challenges faced by sickle cell patients…
…
continue reading
1
New Findings from the EGID Partners Registry with Dr. Elizabeth Jensen
33:34
33:34
Lire Plus Tard
Lire Plus Tard
Des listes
J'aime
Aimé
33:34
Description: Co-hosts Ryan Piansky, a graduate student and patient advocate living with eosinophilic esophagitis (EoE) and eosinophilic asthma, and co-host Holly Knotowicz, a speech-language pathologist living with EoE who serves on APFED’s Health Sciences Advisory Council, have a conversation about the latest findings from the EGID Partners Regist…
…
continue reading
1
Journey Beyond Diagnosis: Gary Linehan's Hike and Hope
22:44
22:44
Lire Plus Tard
Lire Plus Tard
Des listes
J'aime
Aimé
22:44
On this episode, Gary Linehan, an experienced educator and avid hiker, shares his profound journey from being diagnosed with polycythemia vera (PV) in 2021 to embarking on ambitious hiking adventures, including the Tour Mont Blanc. Linehan discusses his initial symptoms, the challenges of misdiagnosis, and the crucial support system that includes h…
…
continue reading
Your bleeding disorder doesn’t define you. But it is a part of who you are. And the only way to learn your potential, is to take that first step. Chris talks with Paul Sebastian and Sam Kishyo about their first steps, and learning that the journey can only take you as far as you’re willing to go. The Final Summit was also made possible by support f…
…
continue reading
1
Jerome Robbins (with Liz Rosenfeld)
1:04:32
1:04:32
Lire Plus Tard
Lire Plus Tard
Des listes
J'aime
Aimé
1:04:32
Today, special guest Liz Rosenfeld discusses the choreographer Jerome Robbins. Born in New York to Jewish immigrants, Robbins pursued dance and radical politics––until, under the threat of being blacklisted and exposed for his sexuality, reporting on his former comrades to the House Committee on Unamerican Activities. As one of Broadway's star chor…
…
continue reading
1
S9 Ep. 3: Gimme gimme shock treatment, part 3 (Inotropes and vasopressors)
17:28
17:28
Lire Plus Tard
Lire Plus Tard
Des listes
J'aime
Aimé
17:28
Today's episode is the final in our series on inotropic and vasopressor medications. Today, we're going to tackle some of the more obscure inotropes and vasopressors - these medications typically aren't encountered terribly often within anaesthesia. During this episode, we discuss milrinone, levosimendan, methylene blue and hydroxocobalamin (Vitami…
…
continue reading
1
Hemophilia Film: What We Wished We Could Be
1:04:38
1:04:38
Lire Plus Tard
Lire Plus Tard
Des listes
J'aime
Aimé
1:04:38
Patrick has an exclusive conversation with the filmmakers of What We Wished We Could Be, a story about a couple who must sacrifice their dreams in order to confront the consequences of the contaminated blood scandal. Patrick sits down in-studio with screenwriter, Jenna-Louise Hawkins; Director, Luke Shelley; and producer Sophie Stacy about the chal…
…
continue reading
1
007 - Is My 'Artist Facade' Real? (feat. Hady Afif)
26:51
26:51
Lire Plus Tard
Lire Plus Tard
Des listes
J'aime
Aimé
26:51
In this new episode with Dubai-based photographer Hady Afif, we discuss the art industry, social media, and the significance of culture within an artist's work. Is it our duty to portray our heritage? Why is everyone suddenly so aloof and famous? What makes you a "real artist"? Do we have to portray a facade in real life for people to take us serio…
…
continue reading
Inside the mind of everyone with a bleeding disorder exist two unique mindsets: “Why is this happening to me?” And “If I can take on this, I can take on the world.” Today, Chris talks with chef Mike Hargett and pediatrician Dr. Vyankatesh Pralikar about their unique journeys of facing their own doubts, and coming out stronger on the other side. The…
…
continue reading
1
Live in Atlanta: Thriving with Thalassemia
46:11
46:11
Lire Plus Tard
Lire Plus Tard
Des listes
J'aime
Aimé
46:11
On this episode of Thal Pals we’re live in Atlanta, Georgia for the 2024 Cooley’s Anemia Foundation’s 2024 Patient-Family Conference. We assembled a panel moderated by Dr. Kevin Kuo and guest host Shae Ghosh. The panel dove into inspiring stories and practical advice from individuals living with thalassemia. Brian Goff, CEO of Agios Pharmaceuticals…
…
continue reading
Stories are more than tall tales. They help us relate. They inspire. They educate. They make us feel less alone. Chris talks with Chetan Motiwaras and Patrick James Lynch about the power of story when it comes to bleeding disorders, and how their drive to tell stories led them on their own life’s journey. The Final Summit was also made possible by …
…
continue reading
1
S9 Ep. 2: Gimme gimme shock treatment, part 2 (Inotropes and vasopressors)
14:35
14:35
Lire Plus Tard
Lire Plus Tard
Des listes
J'aime
Aimé
14:35
Today's episode - the second in our three episode series focusing on inotropic and vasopressor medications - sees us covering some more medications commonly (or uncommonly, depending on your scope of practice) encountered within anaesthesia. During this episode, we discuss vasopressin, dopamine and dobutamine. Resources for today's episode: StatPea…
…
continue reading
1
Gene Therapy Reimbursement? We got you covered.
43:43
43:43
Lire Plus Tard
Lire Plus Tard
Des listes
J'aime
Aimé
43:43
Patrick survives his first tornado warning and we’ve got Joana Baquero sharing education and advocacy updates on Factor 1 Deficiency and Tammy Black from the Immune Deficiency Foundation. Plus, a new Gene Therapy segment with Jim Kenny, an expert on pharmacy reimbursement. Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Show …
…
continue reading
Every story has a beginning. And every journey starts with that first step. Chris talks with Trevor Martin & Destiny Danaye, two budding artists with bleeding disorders who, despite their young age, have lived an entire life before their journey even began. The Final Summit was also made possible by support from Genentech. Visit GenentechHemophilia…
…
continue reading
For many of us, the mountains we climb aren’t physical. They’re spiritual, mental, psychological, and ultimately inspirational. In this season, we’re hearing from people with bleeding disorders from all over the world, who faced their own final summit, and fought for their dreams despite all obstacles. Tune into Season Three of The Final Summit. Co…
…
continue reading
1
Live from EOS Connection 2024, Ryan Piansky and Mary Jo Strobel
14:21
14:21
Lire Plus Tard
Lire Plus Tard
Des listes
J'aime
Aimé
14:21
Description: Co-hosts Ryan Piansky, a graduate student and patient advocate living with eosinophilic esophagitis (EoE) and eosinophilic asthma, and Mary Jo Strobel, APFED’s Executive Director, have a conversation about EOS Connection 2024, live at the conference. In this episode, Ryan and Mary Jo discuss highlights of EOS Connection 2024 including …
…
continue reading
1
S9 Ep. 1: Gimme gimme shock treatment, part 1 (Inotropes and vasopressors)
15:06
15:06
Lire Plus Tard
Lire Plus Tard
Des listes
J'aime
Aimé
15:06
Today's episode is the first in a series of three that focus on inotropic and vasopressor medications used within anaesthetic practice. During this episode, we discuss metaraminol, ephedrine, phenylephrine, noradrenaline and adrenaline. There's one section of our episode where we thought it important to clarify what we're saying, as to out ears it …
…
continue reading
1
The Dark Side of High Achievement
37:21
37:21
Lire Plus Tard
Lire Plus Tard
Des listes
J'aime
Aimé
37:21
Is there a darker side to the extraordinary accomplishments of people with bleeding disorders? Guest segment host, Luke Pembroke, ask just that on the latest I’m Fine, featuring blood brother and Paralympian, Jack Bridge. Also, Patrick and Amy hit up the Chief Patient Officer Summit and got insight on what true patient inclusivity is all about. Plu…
…
continue reading
1
PKD International Guidelines
37:30
37:30
Lire Plus Tard
Lire Plus Tard
Des listes
J'aime
Aimé
37:30
On this episode of 'Just Listen, Voices of PK Deficiency,' host Dr. Rachel Grace is joined by patient advocate leaders Tamara Schryver of Thrive with PKD and Alejandra Watson of the PKD Foundation to discuss the newly available international guidelines for diagnosing and managing pyruvate kinase deficiency (PKD). The discussion highlights the impor…
…
continue reading
1
Iron Will – Management of Iron Overload
24:58
24:58
Lire Plus Tard
Lire Plus Tard
Des listes
J'aime
Aimé
24:58
On this episode of Thal Pals: The Alpha Beta Revolution, hosts NinaMaria Badalementi and Dr. Kevin Kuo dive into the topic of iron overload, a critical issue for patients with thalassemia. They discuss the body's mechanisms in handling iron, the dangers of iron overload due to blood transfusions, and the importance of chelation therapy. Dr. Kuo emp…
…
continue reading
1
Janie Davis, Director of Patient Advocacy at Agios
14:29
14:29
Lire Plus Tard
Lire Plus Tard
Des listes
J'aime
Aimé
14:29
Holly John, Agios’ Senior Director of Patient Advocacy, has a partner working with her on sickle cell disease patient advocacy! On this episode of Cheat Codes: A Sickle Cell Podcast, Dr. Z and Dr. C Janie Davis. Janie is the Director of Patient Advocacy at Agios Pharmaceuticals and is excited to work with the sickle cell community. SHOW DESCRIPTION…
…
continue reading
1
Clinical Trials, Caregiving, and NEW MUSIC!?
41:53
41:53
Lire Plus Tard
Lire Plus Tard
Des listes
J'aime
Aimé
41:53
On this episode, Patrick James Lynch honors the late Neil Frick, Senior VP for Medical Programs at the National Bleeding Disorders Foundation, recognizing his invaluable two-decade contribution to the bleeding disorders community. We also discuss hemophilia B gene therapy with Dr. Mark Redding, focusing on unique clinical trial designs and the role…
…
continue reading
1
Extra Bad Gays June 2024: Pride From Stonewall to Subaru (Trailer)
20:06
20:06
Lire Plus Tard
Lire Plus Tard
Des listes
J'aime
Aimé
20:06
Starting with a reading from Martin Duberman's book Stonewall about the riots that kicked off a revolution, we reflect on the history of increasing corporate involvement in Pride, some unreasonably horny Subaru ads, a Raytheon Pride slogan from this year that made both of us momentarily speechless, and the politics and ethics of engaging with corpo…
…
continue reading
1
What to Know about Progression in Polycythemia Vera
23:43
23:43
Lire Plus Tard
Lire Plus Tard
Des listes
J'aime
Aimé
23:43
On this episode, Dr. Douglas Tremblay from Mount Sinai School of Medicine in New York City discusses progression in polycythemia vera (PV). He elaborates on the transformation of PV into other diseases such as myelofibrosis and acute myeloid leukemia (AML), different ways progression can be defined, and the factors that contribute to the risk of pr…
…
continue reading
1
The Importance of Community-Based Organizations for the SCD Community
45:48
45:48
Lire Plus Tard
Lire Plus Tard
Des listes
J'aime
Aimé
45:48
Join Dr. Z and Dr. C as they host a live panel from Florida with key figures from various community-based organizations (CBOs) dedicated to supporting those affected by sickle cell disease. Panelists share insights on the vital roles CBOs play, their unique challenges, successes, and the importance of collaborations with healthcare providers, pharm…
…
continue reading
1
The multi-faceted role of HTC social workers
1:02:23
1:02:23
Lire Plus Tard
Lire Plus Tard
Des listes
J'aime
Aimé
1:02:23
Patrick sits down with HTC social workers, Kathaleen Schnur and Dianne Bartlett, about the ever-evolving role of social workers in the HTC comprehensive care system. Plus, on the latest I’m Fine, Patrick answers the question, What do clotting factor levels mean to me in this new age of hemophilia treatment? Show Notes: Subscribe: The BloodStream Po…
…
continue reading
1
Artificial Intelligence and Patient Education
35:45
35:45
Lire Plus Tard
Lire Plus Tard
Des listes
J'aime
Aimé
35:45
Co-host Ryan Piansky, a graduate student and patient advocate living with eosinophilic esophagitis (EoE) and eosinophilic asthma, and co-host Holly Knotowicz, a speech-language pathologist living with EoE who serves on APFED’s Health Sciences Advisory Council, have a conversation about artificial intelligence (AI) and patient education, with guest …
…
continue reading
1
Christopher Marlowe (with Will Tosh)
1:16:59
1:16:59
Lire Plus Tard
Lire Plus Tard
Des listes
J'aime
Aimé
1:16:59
Today's special guest is Will Tosh, Head of Research at Shakespeare's Globe, London, and the author of a new book, “Straight Acting: The Many Queer Lives of William Shakespeare.” Having answered the obvious question in the prologue, the book becomes a sort of emotional biography of Shakespeare’s private life, but uses that his life and his work to …
…
continue reading
On this episode of Thal Pals, your host NinaMaria Badalementi, along with special guests Yasmeen and Paris, takes listeners through a detailed discussion about Cooley's Care Walks. We start with Yasmeen and Paris sharing personal experiences with thalassemia, the significance of community, and encouraging participation in Cooley's Care Walks. The e…
…
continue reading
1
Raising Two Children with PK Deficiency
26:53
26:53
Lire Plus Tard
Lire Plus Tard
Des listes
J'aime
Aimé
26:53
On this episode, Dr. Rachael Grace talks with the King family. Jennifer and Jerry King have been raising William and Lily. Both have pyruvate kinase deficiency and we discuss how they’ve managed the disease with their two children.. SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast about Pyruvate Kinase Deficiency and is intended f…
…
continue reading
1
Life with an Invisible Disorder
28:15
28:15
Lire Plus Tard
Lire Plus Tard
Des listes
J'aime
Aimé
28:15
Patrick sits down with Thomas Bartlett, Myasthenia Gravis patient and advocate, about the unique struggles of living with an invisible chronic disorder. Also, we all know if you want real answers — ask a nurse. We’ve got Andrea Buxton, Nurse Practitioner at the Hemophilia Outreach Center in Green Bay, WI, with her account of the first commercial do…
…
continue reading
1
S8 Ep. 10: True trans soul rebel (Anaesthesia for transgender and gender diverse adults)
24:22
24:22
Lire Plus Tard
Lire Plus Tard
Des listes
J'aime
Aimé
24:22
Today, we discuss a 2023 BJA Education article titled 'Perioperative care for transgender and gender diverse adults'. We start with a discussion of words and terms that are useful to understand, before diving in to discussions about a trauma-informed care approach to minimise and hopefully eradicate negative preoperative experiences, physical, chem…
…
continue reading
1
Food-induced Immediate Response and Eosinophilic Esophagitis
37:22
37:22
Lire Plus Tard
Lire Plus Tard
Des listes
J'aime
Aimé
37:22
Co-host Ryan Piansky, a graduate student and patient advocate living with eosinophilic esophagitis (EoE) and eosinophilic asthma, and co-host Holly Knotowicz, a speech-language pathologist living with EoE, who serves on APFED’s Health Sciences Advisory Council, have a conversation about food-induced immediate response in eosinophilic esophagitis (E…
…
continue reading
1
The Warrior Poet: A Rising Star: Dr. Alex Glaros
27:44
27:44
Lire Plus Tard
Lire Plus Tard
Des listes
J'aime
Aimé
27:44
On this episode of Cheat Codes: A Sickle Cell Podcast, we’re coming to you again from Detroit, Michigan. Here, the docs sit down with Dr. Alex Glaros. Dr. Glaros is a Pediatric Hematologist-Oncologist at Children’s Hospital of Michigan. SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people…
…
continue reading
1
S8 Ep. 9: The long and winding road, part 2 (Anaesthesia for post-heart-transplant patients)
23:49
23:49
Lire Plus Tard
Lire Plus Tard
Des listes
J'aime
Aimé
23:49
Today, in part 2 of our 2 part series on anaesthesia for previous heart transplant recipients, we discuss the care of these patients for non-cardiac surgery with special guest, Dr Ivan Rapchuk. We begin by covering the electrophysiology of a transplanted heart and what you may see on the ECG, and then proceed to the management of our theoretical pa…
…
continue reading
Mild hemophilia truly does matter and we’re with Shellye Horowitz, formally with HFA, to hear about HFA’s Mild Matters program. Plus the final Elite Athletes segment with Paul McLaughlin and I’m Fine with Luke Pembroke. Show Notes: Subscribe: The BloodStream Podcast Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. I’m Fine and…
…
continue reading