Living with an Ostomy and Crohn's Disease with Guest Tina (Own Your Crowns)

The Beautiful Bag

In this episode of "The Beautiful Bag Podcast," LeeAnne is joined by a special guest, Tina, known as "Own Your Crohn's" on Instagram. Tina shares her inspiring and deeply personal journey of living with Crohn's disease and undergoing an ostomy procedure. Her story is one of resilience, breaking cultural stigmas, and finding strength in adversity.

Key Takeaways:

1. Tina's Crohn's Journey: Tina was diagnosed with ulcerative colitis over 17 years ago, and her disease progressed from mild to severe. She faced challenges with limited treatment options and cultural stigma.

2. Biological Therapies: Tina tried various advanced therapies and biologics, but they did not provide relief, leading her to consider surgery.

3. Facing Surgery: At the age of 24, Tina was confronted with the prospect of surgery. She underwent a J pouch surgery, but it didn't work out due to the development of complications related to Crohn's disease.

4. Cultural Stigma: Tina highlights the cultural taboos and stigma associated with ostomies in certain communities. She shares how these stigmas can affect marriage, temple visits, and daily life.

5. Mental Health Challenges: Tina discusses the mental and emotional toll of living with an ostomy and how societal pressures can impact one's self-esteem and mental well-being.

6. Overcoming Stigmas: Tina emphasizes the importance of breaking through these stigmas and advocating for acceptance and inclusion in all communities, regardless of health conditions.

7. Sexual Health: The podcast delves into the topic of how ostomies and fistulas can affect sexual health. Tina and LeeAnne share their personal experiences and offer insights into maintaining a fulfilling sex life.

8. Quality of Life with an Ostomy: Tina shares how her ostomy has improved her quality of life, allowing her to enjoy activities and experiences she couldn't before.

9. Marriage and Acceptance: Tina discusses the complexities of marriage in the context of chronic illness and how open communication is essential for understanding and acceptance within relationships.

Tina's journey is a testament to the power of resilience and self-acceptance. Despite facing numerous challenges, she has embraced her ostomy and become an advocate for breaking the taboos surrounding ostomies and chronic illnesses.

Connect with Us:

• Link to Hollister Video - How to Manage Emotions
• Follow "The Beautiful Bag Podcast" on Instagram @thebeautifulbagpodcast.
• Connect with Tina on Instagram @ownyourcrohns.
• Visit Tina's blog and advocacy work for more information on living with Crohn's disease and ostomies.