Allison Rosen's Inspiring Tale: Thriving Beyond an Ostomy

The Beautiful Bag

Intro (00:06-00:19):

• LeeAnne warmly welcomes the audience to "The Beautiful Bag Podcast."
• The special guest, Allison, is introduced, and the host shares their exciting meeting at the UOAA annual convention.
• Reflecting on the thrill of meeting individuals in person after connecting with them on social media.

Introduction to Allison's Story (00:19-01:55):

• Allison's background in working at the American Cancer Society and her journey with colorectal cancer.
• Being diagnosed with Crohn's disease at the age of 12 and experiencing remission for several years.
• The sudden onset of unusual symptoms leading to a diagnosis of colorectal cancer.
• Emphasis on the importance of regular check-ups and colonoscopies.
• Describing the shock and challenges of facing a cancer diagnosis and the need for prompt medical attention.

The Journey Begins (01:55-02:33):

• Allison's life before cancer and her work in cancer research in Houston, Texas.
• Receiving a clean bill of health during a previous colonoscopy.
• The gradual onset of concerning symptoms leading up to the cancer diagnosis.
• Symptoms and Diagnosis (02:33-05:46):
• Allison's experience with changing bowel habits, weight loss, fatigue, and abdominal pain.
• The discovery of a blockage and initial uncertainty about the diagnosis.
• The shocking moment when Allison was diagnosed with colorectal cancer.
• Seeking multiple surgical opinions and ultimately choosing MD Anderson for treatment.
• The importance of personalized care and finding the right medical team.

Quality of Life with an Ostomy (05:46-07:53):

• Discussion about the misconceptions and fears surrounding ostomies.
• Allison's initial hesitation and her decision to opt for a J-pouch after surgery.
• Reflecting on how she would make different choices if she knew then what she knows now.
• The importance of education and dispelling myths about life with an ostomy.

Overcoming Preconceived Notions (07:53-10:50):

• Addressing common questions people have about living with an ostomy, including eating normal food, wearing regular clothes, and concerns about relationships.
• Alison's personal experiences with dating and relationships after having an ostomy.
• The role of the ostomy community in providing support, sharing stories, and breaking stigmas.
• The positive response to Allison's social media posts about her ostomy.
• Embracing and Naming the Ostomy (10:50-13:18):
• Discussing the significance of naming the ostomy, with Allison sharing the name "Phil."
• Allison's experience of wearing a bikini for the first time and embracing her scars and ostomy.
• The power of community and connecting with like-minded individuals who understand.
• The growth and support Allison received through social media.

Advocacy and Community Engagement (13:18-15:47):

• Allison's advocacy work, including volunteering with cancer support programs and ostomy associations.
• The importance of mentoring and supporting individuals considering or living with an ostomy.
• The impact of sharing personal stories and experiences to help others.
• Encouraging people to live life to the fullest and not let fear of an ostomy hold them back.

The Top Three Questions (15:47-End):

• The most common questions Allison receives about ostomies: eating normal food, wearing regular clothes, and concerns about relationships.
• The role of education and dispelling misconceptions about life with an ostomy.
• The importance of living life fully and not letting an ostomy prevent someone from enjoying life.

Podcast Outro:

• The host expresses gratitude to Allison for sharing her inspiring story and valuable insights.
• Encourages listeners to connect with Allison on social media and stay tuned for more episodes of "The Beautiful Bag Podcast."

Resource Links:

• Allison's TikTok
• Allison's Instagram

Closing Message from Allison:

"An ostomy is not the end of your life; it is just the beginning of your life."