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Elaine Godley talks to David Rose | Rare Health Disease | Occipital Horn Syndrome
Manage episode 364494530 series 3110479
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Elaine Godley talks to David Rose, who shares a true life experience of living with a very rare disease known as occipital horn syndrome (ohs), along with a few more common chronic health conditions.
David has been working in the rare disease industry for the last 5 years and has been doing various volunteer and trustee roles for nearly 11 years in rare disease and disability.
More about David: https://www.instagram.com/occipitalhornadvocate/ https://www.linkedin.com/in/drose2/ ~~~~~~~~~~~~~~~~~~~~ ELAINE GODLEY | Dedicated To Improving Your Health & Wellbeing 🌸 More details here: https://linktr.ee/elainegodley
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