In this episode of Cancer Out Loud, host Sarah Paul sits down with VanDawn Williams, a fashion industry professional and young adult who shares his inspiring journey through a rare metastatic cancer diagnosis. VanDawn opens up about his career in fashion, the vibrant lifestyle he enjoyed, and the life-altering shock of his diagnosis. He candidly discusses the mental and physical challenges he faced, including undergoing emergency surgery and the impact of losing his job. VanDawn emphasizes the crucial role of mental health support and the importance of finding a community of young adults with cancer. He shares his coping strategies, such as creating routines, pursuing creative endeavors, and practicing meditation. Throughout his journey, VanDawn expresses deep gratitude for the unwavering support of his partner, friends, and family. Join us as VanDawn recounts finding support and blessings in unexpected places, highlighting the significance of a strong support network, including organizations like CancerCare. He also sheds light on the silent struggles young adults with cancer face, such as mental health challenges and changes in intimacy. VanDawn encourages others not to let cancer define them and to continue pursuing their dreams. His perspective on life has shifted, and he now trusts his journey and embraces personal growth. Tune in to hear VanDawn’s powerful story of resilience, community, and personal transformation. Takeaways: Being diagnosed with cancer can completely disrupt one's life and career. Mental health support is crucial for individuals facing a cancer diagnosis. Creating routines, pursuing passions, and practicing meditation can help cope with the challenges of cancer. A strong support system, including a partner, friends, and family, is invaluable during the cancer journey. Silent struggles, such as mental health challenges and changes in intimacy, need to be openly discussed and addressed. Cancer should not define a person's identity or limit their dreams and aspirations. Trusting one's journey and embracing personal growth can lead to a positive perspective on life.…

In this episode, host and oncology social worker Julia Manna speaks with Muriel Linetsky, a uterine cancer survivor, about her journey from diagnosis to treatment and recovery. Muriel shares her emotional responses to her diagnosis, the challenges she faced during treatment, and the importance of having a strong support system. She emphasizes the need for self-advocacy and her proactive steps to manage her health. Muriel also reflects on her personal strengths and the changes in her perspective on life since her diagnosis and offers valuable advice for those newly diagnosed with cancer. Takeaways: Muriel experienced a range of emotions upon her cancer diagnosis, including fear and anxiety. She underwent multiple treatments, including surgery and radiation therapy, which were physically and emotionally challenging. Support systems, including oncology social workers, played a crucial role in Muriel's journey. Self-advocacy is essential for navigating the healthcare system and making informed decisions about treatment. Muriel emphasizes the importance of researching and asking questions about one's health. Perseverance and determination are key strengths that helped Muriel through her cancer journey. Muriel's perspective on life has shifted, focusing on living in the moment and pursuing her passions. She encourages others to seek help and not isolate themselves during their cancer journey. Muriel highlights the significance of connecting with others with similar experiences for support. She believes being informed and proactive can empower patients in their healthcare journey.…

In this episode, we bring you an engaging and informative panel discussion from our AYA (Adolescent and Young Adult) workshop series, focusing on the unique challenges young adults face in cancer survivorship. Our expert moderators delve into the critical transition from active treatment to post-treatment life, exploring common themes such as managing ongoing side effects, overcoming the fear of recurrence, dealing with scanxiety, and adjusting to less frequent medical appointments. Join us as we uncover valuable strategies and support systems to help AYA survivors navigate their journey beyond cancer, fostering resilience and hope. Key Takeaways: Transition from active treatment to post-treatment Managing ongoing side effects Fear of recurrence and scanxiety Managing multiple roles and family dynamics Adjustment to less frequent medical appointments Support systems for AYA survivors Resilience and hope in survivorship…

In this special episode of Cancer Out Loud, we celebrate the 80th anniversary of Cancer Care . Join us as we explore Cancer Care 's remarkable journey over the past eight decades, highlighting key milestones and achievements. Additionally, we focus on the importance of mental health for cancer patients and their families during Mental Health Awareness Month. Discover practical tips and strategies for managing the emotional challenges of a cancer diagnosis and learn how integrating mental health care into cancer treatment plans can significantly improve outcomes. Whether you're a patient, caregiver, or supporter, this episode offers valuable insights and resources to help navigate the complexities of cancer and mental health. Key Takeaways: Cancer Care 's Legacy : Key milestones and achievements over 80 years. Mental Health Matters : Importance of mental health in cancer care. Signs and Support : Recognizing the need for mental health support and how to seek help. Coping Strategies : Practical tips for managing the emotional burden of cancer. Resources Available : Cancer Care offers services for patients, survivors, caregivers, and the bereaved.…

Continue listening to Ira's story as host Sarah Paul continues their conversation, exploring the profound emotional support and life changes following his cancer diagnosis. In the second part of this episode, Ira opens up about the vast network of support that buoyed him through his treatment—from family and friends to medical teams and support groups. He emphasizes the invaluable role of Cancer Care's individual counseling and support groups in providing specialized guidance and a sense of community. As Ira discusses his return to work and the adjustments he's made in his life and career, his story serves as a powerful testament to the strength found in vulnerability and the importance of advocacy in one's cancer journey. Tune in to hear how Ira's journey through cancer has reshaped his perspective on life and his approach to living it. Key Takeaways: Leverage the power of community, from personal connections to professional groups, to navigate the cancer journey more effectively. Engage with specialized counseling and support groups to address the unique emotional challenges of living with cancer. Be open to adjusting life and work commitments to accommodate the realities of ongoing cancer treatment and recovery. Continuously advocate for yourself within the healthcare system to ensure your needs are met, especially when dealing with insurance and treatment options. Embrace life more fully and prioritize relationships and personal fulfillment over professional obligations. Disclaimer: This two-part episode was recorded over the past several months. As a result, the timeline of some events and experiences shared by Ira may not reflect the most recent developments in his journey.…

In the upcoming episode of Cancer Out Loud, host Sarah Paul, Senior Director of Social Work, sits down with Ira to delve deeper into his journey with stomach cancer. This first part of a special two-part series captures Ira's raw and detailed account from the onset of symptoms to the complexities of treatment and the life-altering changes he faced. Ira openly discusses his emotional rollercoaster, the physical toll of chemotherapy, and the support he received from healthcare professionals and Cancer Care support programs. As he navigates through his diagnosis, multiple consultations, and surgical decisions, Ira's story highlights the importance of advocacy, resilience, and the search for hope amidst adversity. Tune in to hear how Ira's story unfolds, shedding light on the real challenges and decisions faced by those living with cancer. Key Takeaways: Understand the importance of self-advocacy in medical treatment, learning from Ira’s proactive approach in seeking multiple opinions and choosing treatment paths. Explore strategies for managing the profound emotional impacts of cancer, as Ira shares how he dealt with despair and found his fighting spirit. Recognize the critical role of comprehensive support, from medical teams to social workers and family, in navigating the cancer journey. Gain insights into the decision-making process for cancer treatment, emphasizing informed consent and understanding of treatment implications. Disclaimer: This two-part episode was recorded over the past several months. As a result, the timeline of some events and experiences shared by Ira may not reflect the most recent developments in his journey.…

In this episode of Cancer Out Loud , host and oncology social worker, Sarah Paul has a candid conversation with Jessica Engelhart, who shares her personal experience with colon cancer. Jessica discusses the challenges she faced during her treatment and recovery post-surgery, and the importance of mental health support during this time. She provides insights into how her background as a therapist helped her cope with the anger and anxiety that came with her diagnosis, utilizing coping techniques such as journaling, mindfulness and engaging with the Peloton community. Tune in to hear more about Jessica’s story and the resources she found helpful during her journey. Learn more about Suleika Jaouad's, The Isolation Journals Key Takeaways Utilize coping techniques such as journaling, mindfulness, and breathing exercises to manage the emotional and psychological aspects of a cancer diagnosis. Explore mental health support and/or support groups to connect with others who are going through similar experiences. Avoid relying on the portrayal of cancer in the media, as it often focuses on negative outcomes and can create unnecessary fear and anxiety. Be mindful of the terminology used to describe cancer, as terms like 'battle' and 'warrior' can be misleading and place unnecessary pressure on individuals. Build a strong support system of friends, family, and healthcare professionals who can provide emotional and practical support throughout the cancer journey. Take care of your mental and emotional well-being by setting boundaries, practicing self-care, and seeking professional help when needed. Focus on the present moment and prioritize activities that bring joy and fulfillment, as life is precious and unpredictable.…

Meet Malissa Matthews, a mother, a wife, a woman of faith. Late in 2022, Malissa was diagnosed with a very rare type of endometrial cancer and has been fighting for her life ever since. Tune in as Julia Manna, an oncology social worker at CancerCare, as she explores the challenges Malissa faced in her career due to treatment and the importance of having a supportive network. Malissa emphasizes the significance of maintaining a positive attitude and finding empowerment in the face of a terminal diagnosis. She encourages individuals to trust their voice and seek second opinions when necessary. Malissa also highlights the importance of understanding different types of cancer and the need for counseling and support programs.…

November is National Family Caregivers Month. In this episode, we delve into the often-unseen world of cancer caregiving. Join us as we interview Cancer Care’s Caregiver Program Coordinator, Dina Smith, LMSW, exploring the multifaceted challenges and emotional experiences faced by those caring for loved ones diagnosed with cancer. We discuss practical issues, emotional tolls, family dynamics, and the evolving nature of the caregiving role. This episode offers valuable insights and resources for cancer caregivers, shedding light on their vital role in the cancer experience. Tune in to gain a deeper understanding and appreciation for these unsung heroes in cancer care.…

In this episode, Mike and Nancy open up about the profound impact of losing their spouses and the unforeseen journey of healing that followed. Join us as they recount their experiences at Cancer Care 's Healing Hearts Bereavement Family Camp, a place they never imagined would play a pivotal role in their paths towards recovery. Joined by Kathy Nugent, Senior Director of Regional Programs, we hear about how Healing Hearts shaped Mike and Nancy's experience. They speak candidly about the challenges and nuances of blending their lives and supporting their young daughters through this complex process. This conversation offers an honest and raw look into navigating grief, finding strength in vulnerability, and building a new family from a place of shared understanding and resilience. Listen in for a genuine and heartfelt exploration of life, loss, and the unexpected forms that healing can take.…

In the second part of this episode, oncology social worker Lucia continues her conversation around grief with two former members of her Bereavement Support Group, Jay and Lou. After being with their wives for upward of 30 years, they share their journeys of loss, moving forward and survival. Join us for an episode exploring the evolving nature of grief and the crucial role of a support system; a raw look at love, loss, and healing.…

Cancer Out Loud returns this summer to share new stories of hope and resilience. In the first part of this heartfelt episode, oncology social worker, Lucia, brings together two former members of her Bereavement Support Group, Susan and Mary, to share their experiences navigating grief and loss after the death of their husbands. They touch on the universality of loss and yet the profoundly personal journey of bereavement. With Lucia guiding their conversation, they delve into the complexities of healing, the importance of support systems, and the strength they found in unexpected places. Tune in for this intimate exploration of grief that illuminates the tragedy of loss, the power of resilience, and where to find glimmers of hope.…

March is National Social Work Month and an opportunity to reflect on the positive impact that Cancer Care ’s services have had on the oncology community. For our Season 6 finale and the three year anniversary of the Cancer Out Loud Podcast launch, we take a closer look at what it means to be an oncology social worker at Cancer Care . Listen in as earlier podcast guests share their sentiments of what it would be like without the support of Cancer Care . Cancer Out Loud will return later this Spring for Season 7.…

Before her cancer diagnosis, Valarie worked in human resources. After being diagnosed with both multiple myeloma and breast cancer, Valarie’s life took a different path- one of advocacy and patient education. As her goals shifted, she focused on educating others about the disease while shedding light on health inequities. In the penultimate episode of Season 6, Valarie shares how advocating for herself led to empowering others to find their voice.…

When Judy was diagnosed with a rare form of ovarian cancer almost a decade ago, many emotions ran through her mind: shock, fear, disbelief and curiosity. Judy, a research scientist by trade, wanted to know more about her diagnosis and was disappointed by the lack of literature and research available. Join us for a story of hope, perseverance, and gratitude as Judy shares the highs and lows of navigating a rare cancer diagnosis.…