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In Her Ellement
1 Bringing Your Whole Self to Work with Port of Rotterdam’s Saskia Mureau 21:38
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21:38People want to feel supported and safe at work – and inspired to innovate. What can people working at large corporations do to create this kind of environment? Saskia Mureau is the Director of Customer Digital at the Port of Rotterdam where she is harnessing digital systems to reduce emissions. She is passionate about creating inclusive workplaces where psychological safety and collaboration drive meaningful change. In this episode, Kamila sits down with Suchi to talk about why she chose to work at large corporations rather than startups. Saskia also reflects on her personal experiences, including navigating IVF while at work, and discusses how organizations can foster environments where employees feel empowered to bring their whole selves to work. Links: Saskia Mureau on Linkedin WHO infertility research BCG 2024 report on psychological safety in the workplace Suchi Srinivasan on LinkedIn Kamila Rakhimova on LinkedIn About In Her Ellement: In Her Ellement highlights the women and allies leading the charge in digital, business, and technology innovation. Through engaging conversations, the podcast explores their journeys—celebrating successes and acknowledging the balance between work and family. Most importantly, it asks: when was the moment you realized you hadn’t just arrived—you were truly in your element? About The Hosts: Suchi Srinivasan is an expert in AI and digital transformation. Originally from India, her career includes roles at trailblazing organizations like Bell Labs and Microsoft. In 2011, she co-founded the Cleanweb Hackathon, a global initiative driving IT-powered climate solutions with over 10,000 members across 25+ countries. She also advises Women in Cloud, aiming to create $1B in economic opportunities for women entrepreneurs by 2030. Kamila Rakhimova is a fintech leader whose journey took her from Tajikistan to the U.S., where she built a career on her own terms. Leveraging her English proficiency and international relations expertise, she discovered the power of microfinance and moved to the U.S., eventually leading Amazon's Alexa Fund to support underrepresented founders. Subscribe to In Her Ellement on your podcast app of choice to hear meaningful conversations with women in digital, business, and technology.…
Slow Steroid Tapering Succeeds in SLE/Fibromyalgia likely the result of autoimmune problems/ Nurse Suspended Over TikTok Videos About Patients
Manage episode 310999237 series 3079946
Contenu fourni par Susan Hendrix My Story Living. Tout le contenu du podcast, y compris les épisodes, les graphiques et les descriptions de podcast, est téléchargé et fourni directement par Susan Hendrix My Story Living ou son partenaire de plateforme de podcast. Si vous pensez que quelqu'un utilise votre œuvre protégée sans votre autorisation, vous pouvez suivre le processus décrit ici https://fr.player.fm/legal.
In this episode you will hear how steroid tapering is safer for patients with SLE. Research shows that fibromyalgia is a result of autoimmune problems. You will hear what I have been diagnosed with now and lastly a nurse is suspended over her TikTok videos about patient, but she stated that the only thing that is hurt are feelings. Go and leave a review, like and subscribe. #steroid #sle#fibromyalgia #tiktoknurse #gastroparesis #mystorylivingwithlupuspodcast
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246 episodes
Manage episode 310999237 series 3079946
Contenu fourni par Susan Hendrix My Story Living. Tout le contenu du podcast, y compris les épisodes, les graphiques et les descriptions de podcast, est téléchargé et fourni directement par Susan Hendrix My Story Living ou son partenaire de plateforme de podcast. Si vous pensez que quelqu'un utilise votre œuvre protégée sans votre autorisation, vous pouvez suivre le processus décrit ici https://fr.player.fm/legal.
In this episode you will hear how steroid tapering is safer for patients with SLE. Research shows that fibromyalgia is a result of autoimmune problems. You will hear what I have been diagnosed with now and lastly a nurse is suspended over her TikTok videos about patient, but she stated that the only thing that is hurt are feelings. Go and leave a review, like and subscribe. #steroid #sle#fibromyalgia #tiktoknurse #gastroparesis #mystorylivingwithlupuspodcast
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246 episodes
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Susan Hendrix My Story Living With Lupus
1 Let's Discuss Chronic Pain Syndrome with Dr. Jenny Tufenkian 36:10
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36:10In this episode of My Story: Living with Lupus , host Susan Hendrix sits down with Dr. Jenny Tufenkian, a renowned expert in Naturopathic Medicine, to explore the complexities of Chronic Pain Syndrome and its impact on those living with lupus. Dr. Tufenkian dives deep into the physiological and emotional aspects of chronic pain, offering valuable insights on how it affects the body, mind, and daily life of individuals with lupus. She also discusses the latest treatments, coping strategies, and self-care techniques to help manage pain. Whether you're living with lupus or supporting someone who is, this episode provides essential information and compassionate advice to help navigate the challenges of chronic pain. Tune in for an enlightening conversation that blends medical expertise with personal understanding.…
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Susan Hendrix My Story Living With Lupus
1 Planning for Tomorrow: Advance Care Planning 13:38
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13:38Living with a chronic illness teaches us to expect the unexpected. In this episode we discuss the topic of Advance Care Planning. It's not about giving up or focusing on the worst-case scenarios, it's about taking control, making your wishes known, and ensuring peace of mind for you and your loved ones. I's a very hard topic, but a necessary one. Feed Spot Links Top 100 Chronic Illness Podcasts on the web. https://podcast.feedspot.com/lupus_podcasts/ https://podcast.feedspot.com/chronic_illness_podcasts/…
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Susan Hendrix My Story Living With Lupus
1 Living with Lupus: Figuring Out What's Going On 16:06
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16:06Living with Lupus: Figuring Out What’s Going On In this episode, we dive into the complexities of living with lupus, an unpredictable autoimmune disease that impacts every part of life. From understanding the early symptoms to navigating the whirlwind of tests, misdiagnoses, and emotional challenges, this is about finding clarity in the chaos. Join me as I share my personal journey of discovering what’s happening inside my body, the questions I had to ask, and the lessons I’ve learned along the way. Whether you’re newly diagnosed, supporting a loved one, or just curious, this episode offers insights, hope, and encouragement for anyone on the path to understanding lupus. Let’s figure it out together!…
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Susan Hendrix My Story Living With Lupus
1 Unpacking Trump's Sentencing and Its Impact on Healthcare 10:58
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10:58In this episode of Living with Lupus & Beyond , we delve into the implications of former President Donald Trump's sentencing, where a judge granted him an "unconditional discharge" to respect the presidency. What does this controversial decision mean for the United States, its policies, and those navigating chronic illnesses? We explore Trump’s stated plans to restrict coverage for pre-existing conditions, cut disability payments, and tighten Medicaid eligibility, highlighting how these changes could profoundly affect vulnerable populations. Join us as we unpack the political ripple effects on healthcare and discuss actionable steps to protect our rights and access to care.…
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Susan Hendrix My Story Living With Lupus
In this heartfelt and empowering episode of Living with Purpose , we explore the transformative power of speaking life into yourself when you feel there’s nowhere to turn. Discover practical strategies to acknowledge your feelings, harness the power of words, embrace gratitude, and reconnect with your inner strength. Featuring inspiring quotes from Maya Angelou, Oprah Winfrey, Rumi, and Nelson Mandela, this episode reminds you that tough times are just one chapter in your story. Tune in to rediscover your light and remember: you are never alone, and you are always enough .…
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Susan Hendrix My Story Living With Lupus
Human Metapneumovirus (HMPV) is a respiratory virus belonging to the Paramyxoviridae family, closely related to respiratory syncytial virus (RSV). Discovered in 2001, it is a common cause of upper and lower respiratory tract infections across all age groups but is particularly severe in vulnerable populations, such as young children, the elderly, and individuals with weakened immune systems. HMPV spreads through respiratory droplets, direct contact with contaminated surfaces, or close contact with infected individuals. Symptoms typically include cough, nasal congestion, shortness of breath, fever, and, in severe cases, wheezing or bronchitis. In immunocompromised individuals—such as those undergoing chemotherapy, transplant recipients, or those with autoimmune conditions—HMPV can lead to more severe complications, including pneumonia, respiratory failure, or secondary bacterial infections. The lack of specific antiviral treatments or vaccines for HMPV heightens the risk for these groups. Management relies on supportive care, including oxygen therapy and vigilant monitoring for complications. Preventative measures, such as rigorous hand hygiene, wearing masks, and minimizing exposure to symptomatic individuals, are critical to reducing transmission. Due to its potential for severe outcomes in immunocompromised individuals, early recognition and intervention are essential. Awareness of HMPV's impact can aid in improving health outcomes and guiding public health measures.…
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Susan Hendrix My Story Living With Lupus
1 Lupus and the Duffy Antigen-Unveiling the Connection 18:28
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18:28The Duffy antigen, also known as the Duffy antigen receptor for chemokines (DARC), plays a critical role in immune system regulation and disease processes. It is a protein found on the surface of red blood cells and endothelial cells, known primarily for its function as a receptor for chemokines and its role in malaria resistance. However, emerging research has highlighted a fascinating link between the Duffy antigen and systemic lupus erythematosus (SLE), an autoimmune condition. In individuals with lupus, the immune system becomes overactive, targeting the body's own tissues and causing widespread inflammation. The Duffy antigen has been implicated in this process because of its role in modulating immune responses. Specifically, DARC binds to and regulates the levels of chemokines, proteins that guide immune cells to sites of inflammation. Dysregulation of this pathway may contribute to the heightened immune activity observed in lupus. Additionally, certain genetic variations in the Duffy antigen, such as the Fy(a-b-) phenotype, which is common in individuals of African descent, have been associated with altered susceptibility to autoimmune diseases, including lupus. These variations may influence the way the immune system interacts with chemokines and other inflammatory signals. Understanding the relationship between the Duffy antigen and lupus opens new doors for research, offering insights into the genetic and molecular underpinnings of the disease. This connection also holds promise for developing targeted therapies aimed at modulating immune responses in lupus patients, potentially improving outcomes and quality of life. By exploring the link between the Duffy antigen and lupus, scientists are unraveling the complex interplay between genetics, immune regulation, and autoimmunity, providing hope for better treatments and a deeper understanding of this challenging condition.…
My Story Living with Lupus is back with an insightful episode looking ahead to 2025! Join us as we discuss the potential changes in healthcare policies and how they might impact the lupus community. We’ll share tips for navigating these shifts and staying empowered. Plus, we’ll introduce Project 2025 , a new initiative focused on healthcare. Whether you’re living with lupus, supporting a loved one, or advocating for better care, this episode is packed with valuable insights and actionable strategies to prepare for the year ahead. Tune in and let’s move forward together!…
Welcome to My Story Living with Lupus," the podcast dedicated to bringing hope, support, and vital information to those affected by lupus. In this episode, we delve into the challenges and triumphs of balancing a career while managing lupus. Join us as we explore practical strategies for achieving work-life balance, navigating employment challenges, and maintaining productivity without compromising your health. Whether you're newly diagnosed or have been living with lupus for years, this episode offers guidance and encouragement to help you thrive professionally while taking care of your health. Tune in and discover how to create a fulfilling career and a balanced life despite the challenges of lupus.…
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Susan Hendrix My Story Living With Lupus
1 The Breakdown of Health and Health Care in Communities of Color 34:57
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34:57In this two-part episode, I talk about the breakdown of health in underserved communities of color. What really causes the high rate of obesity, hypertension, and heart disease.
Join me on March 1, 2024, to learn more about health equality and health equity. It's time to eliminate health disparities. And it's time for you to become your own best advocate.
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Susan Hendrix My Story Living With Lupus
1 Male Sex, Neuropsychiatric Damage Associated With Increased Risk for NPSLE Flare 25:16
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25:16In this episode you will hear what neuropsychiatric is, the damage it causes and those who are at risk the most. You will also hear about what signs and symptoms to look for.
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Susan Hendrix My Story Living With Lupus
1 Cancer Risk With Sjogrens Syndrome 19:24
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19:24In this episode I tell you why I’ve been MIA due to one of my underlying conditions Sjogrens Syndrome and Lymphoma
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Susan Hendrix My Story Living With Lupus
1 The 411 on Collagen and Autoimmune Illness 38:20
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38:20In this episode you will hear about collagen is it really effective for those with autoimmune illnesses. You will also hear about Racial-Ethnic Diversity and how the U.S. should expect a rise in lupus cases. Lastly you will hear about how older patients with lupus lack follow-up care after a hospitalization. References Cleveland Clinic MedPageToday…
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Susan Hendrix My Story Living With Lupus
1 Who' At The Helm When It Comes To Your Health 23:18
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23:18If you are not in control of your health who is? This episode is all about the importance of taking control of your health and stop allowing others to make decisions for you. Reference CDC World Health Organization To be a gust on My Story Living with Lupus Podcast email: mystorylivingwithlupus@gmail.com in the subject area state guest and tell us about you. Check us out on Amazon at: https://www.amazon.com/shop/iamlupus You will find products that I use to assist me. Check out our website at: https://mystorylivingwithlupus.com, For information on FREE online classes regarding Hypertension…
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Susan Hendrix My Story Living With Lupus
1 Vitamin & Mineral Deficiencies Associated With Lupus/Lupus In Men 32:35
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32:35In this episode I will talk about vitamin and mineral deficiencies associated with lupus. Also I will discuss lupus in men which is rarely talked about.
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Susan Hendrix My Story Living With Lupus
1 Breast Cancer Awareness with Tasha Brown 32:31
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32:31In this episode you will hear the story of Tasha Brown Breast Cancer Activist, Stage 3 Breast Cancer survivor, Stage IV MBC. Wife, Mother and Grandmother . She advocates for African American Women to go and get checked for this silent killer. She gives me motivation to continue on brining awareness to chronic illnesses. You can contact Tasha via social media at: IG: tasha_47loveme, breastcancer_stage_lll_tasha…
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Susan Hendrix My Story Living With Lupus
1 It All About The Remix a Conversation With Dr. Patricia Dhar 51:48
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51:48In this episode it's about the remix with Dr. Patricia Dhar, you will also hear about what I've been up to and a look into the future of My Story Living with Lupus Podcast.
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Susan Hendrix My Story Living With Lupus
1 Glitazone Drug May Cut Lupus Heart Risk 48:46
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48:46In this episode you will hear about how Glitazone Drug May Cut Lupus Heart Risk. Glitazone (Actos) has been widely used by diabetics. We all believe that Americans should have a right to healthcare, but do we really have it, we are a country that will preach to other countries about preserving human rights, but we don't talk the talk nor walk the walk in the country. Resource MedPage Today Visit our store at T-Shirts by My Story - TeePublic Store | TeePublic Visit calmpak and pick one up for you and a loved one at: calmpak - the stress buster Visit the Charlie E & Minnie P Hendrix Foundation to see what we are doing: https://mystorylivingwithlupus.com #lupus #heartrisk #glitazone…
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Susan Hendrix My Story Living With Lupus
In this episode I talk about the 988 Crisis Lifeline and how much health disparities actually will cost the United States by 2040. You will also hear about how a small device helped me make through the worst lupus flare that I have ever had. Resources MedPage Today Calmpak - www.calmpak.org Visit my TeePublic Store - T-Shirts by My Story - TeePublic Store | TeePublic ***Help us to continue to educate, empower those in underserved communities.…
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Susan Hendrix My Story Living With Lupus
1 The Healing Power of I Don't Know 41:06
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41:06In this episode you will hear about the healing power of I Don't Know, basically why it's so hard for physicians to just come out and say that they don't know what is going on regarding your health. Also new approve first systemic treatment for alopecia. Go on over and visit my TeePublic store at: https://www.teepublic.com/stores/my-story?page=6&ref_id=26353 Also go on over to https://mystorylivihngwithlupus.com store and check it out also Resource MedPage Today…
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Susan Hendrix My Story Living With Lupus
1 Racial and Ethnic Bias in Pulse Oximetry and Clinical Outcomes 47:51
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47:51In this episode you will hear what researchers say about racial bias in pulse oximetry and how it delays clinical outcomes for patients of color. You will also hear the TYK2 Inhibitor shows promise in Lupus. Resource MedPage Today Please visit my TeePublic Store all you have to do is click the link below. TeePublic Link: : https://www.teepublic.com/stores/my-story?ref_id=26353…
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Susan Hendrix My Story Living With Lupus
1 Lupus, Sexuality and Intimacy 1:02:15
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1:02:15In this episode I talk about having open communication with your wife, girlfriend or partner about lupus and sex. You will also hear about Monkeypox case reported in the U.S. and lastly one in four Medicare patients being harmed during hospital stay. Resource MedPage Today National Institute of Health Check out my store at: https://www.teepublic.com/stores/my-story?ref_id=26353 Check out my website: https://mystorylivingwithlupus.com Charlie E & Minnie P Hendrix Foundation for Chronic Illness: https://cemphfoundation.com…
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Susan Hendrix My Story Living With Lupus
1 Researcher Tom Paladino/ Scalar Light 56:34
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56:34In this episode you will find out about Scalar Light Healing from Researcher Tom Paladino, share your thoughts on this subject. Also, in this episode you will hear about "In Lupus Normal-Appearing Skin Is Not Normal and Shocking Mismanagement in Our Organ Donation System Is Causing Needless Death. Resource MedPage.com…
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Susan Hendrix My Story Living With Lupus
1 Medical Gaslighting Nothing New to Women of Color 58:00
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58:00In this episode you will hear about Medical Gaslighting, NASH, Medical Errors and Know Who Is Operating on You. Resource MedPage Today
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Susan Hendrix My Story Living With Lupus
1 Study Suggest Why Women Outnumber Men in Lupus 1:08:09
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1:08:09In this episode you will hear about two studies the first is Why Women Outnumber Men in Lupus and Mixed Results for Oral Lupus Drug in Phase II You will also hear about the current health challenges that I have been dealing with. Resource MedPage Today
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Susan Hendrix My Story Living With Lupus
1 Doctor Sued Over Stem Cell Treatments/Case of Cannabis Doctor Goes Up In Smoke 47:07
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47:07In this episode you will hear the latest about my medical treatment, and my decision about a medication the doctor wants me on. Also, you will hear about a doctor who was stating that stem cell treatments could cure COVID-19. Resource MedPageToday
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Susan Hendrix My Story Living With Lupus
1 HHS to Revise Doctor-Insurer Dispute Process Under No Surprises Act/Self-Efficacy’s Impact on Pain and Fatigue in Black Women with Lupus 41:14
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41:14In this episode you will hear about the No Surprises Act (Surprise Billing). Self-Efficacy Impact on Pain and Fatigue in Black Women with Lupus. And a subject near and dear to my heart Stem Cell Therapy. Check out one of my Youtube channels below that I talk about my journey and research on Stem Cell Therapy for Lupus. Resource lupus.org MedPage Today Susan Hendrix- My Journey for Stem Cell Therapy ( My Journey For Stem Cell Therapy (Mesenchymal Stem Cell) PT. 2 (92) My Journey For Stem Cell Therapy - YouTube (92) My Journey For Stem Cell Therapy PT. 1 - YouTube (92) My Journey For Stem Cell Therapy (Mesenchymal Stem Cell) PT. 2 - YouTube…
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Susan Hendrix My Story Living With Lupus
1 What Is Rheumatoid Arthritis? 51:31
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51:31In this episode you will hear about if RA is an overlapping condition to Lupus. Also, you will hear if Kidney Disease Gene Risk Info Aids Prevention in Primary Care. Resources MedPage Today
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Susan Hendrix My Story Living With Lupus
1 Experimental Treatment Offers New Hope Against Lupus 21:30
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21:30You will hear about the trail for a new treatment for lupus, this information was published on May 26, 2021. For the phase 1 trial, the team recruited 31 patients with at least one of several autoimmune conditions, including systemic and cutaneous lupus. Resource U.S. News (27, May 2021) Experimental Treatment Offers New Hope Against Lupus.…
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