Policy & Advocacy for Sibs

The Sibling Leadership Network

This month, we speak with the SLN's Co-Chairs of Policy and Advocacy, Tiffany Banks and Nina Bihani. We discuss why advocacy is so important for sibs, the many ways sibs can get involved in policy & advocacy, the challenges siblings face in policymaking and current issues being worked on by sibs.
Access the transcript of this episode here.
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"If you're not showing up, you're not going to be a part of that important decision-making process"—Nina Bihani

Resources in this episode:

• SLN Policy & Advocacy Page
• SLN June Policy & Advocacy Newsletter
• Health Passport
• Letter of Intent
• FMLA Reform: The Caring For All Families Act
• SSI Penalties: Arc Info
• Technology Access
• Housing Access: From the Arc
• The Americans with Disabilities Act
• SLN Future Planning Resources Page
• Past SLN Podcasts
• Disability Policy Seminar
• Sign up for SLN Newsletters
• The Arc Future Planning Resources
• Health Advocates While in Hospital
• The Arc Policy & Advocacy Resources
• Partners in Policymaking Training
• Right to Access Health Records
• Death and End of Life Resources
• Tiffany Banks: [e-mail]
• Nina Bihani: [e-mail]
• SLN Policy & Advocacy Email: [e-mail]

"What you are able to bring to the table is worthwhile, no matter how small." —Tiffany Banks
"Your lived experience is expertise. " —Tiffany Banks

Music Credit: Hope by Scandinavianz | https://soundcloud.com/scandinavianz
Music promoted by https://www.free-stock-music.com

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Chapitres

1. Policy & Advocacy for Sibs (00:00:00)

2. Please tell us about yourselves and your experience in policy and advocacy. (00:00:45)

3. Why is sibling advocacy so important? (00:05:10)

4. What are some important examples of how advocacy has impacted siblings and our loved ones with disabilities? (00:09:38)

5. What are some other current issues that siblings are advocating for? (00:13:34)

6. what are the main challenges that siblings face in advocacy? (00:21:53)

7. What challenges and or barriers are there to marginalized communities to advocating with their brothers and sisters. (00:27:55)

8. For any beginning advocates listening, what advice can you share about how to best start their advocacy journey with their sibs? (00:32:37)

9. What policy and advocacy resources would you recommend to siblings? (00:39:30)

10. What other words of advice might you have to share with any sibling advocates listening? (00:41:24)