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Undiagnosed Children's Day: Nicole Bateman chats with Claudia Beard
Manage episode 414770920 series 3540907
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For Undiagnosed Children's Day 2024, join host Nicole Bateman for a special episode of "Conversations with a SEND Mum." Nicole chats with Claudia Beard, a parent representative for the charity Swan UK, dedicated to supporting families with children who have undiagnosed genetic conditions.
Episode Highlights:
- What is Syndromes Without a Name (SWAN)?: Claudia provides insights into the concept of syndromes without a name (SWAN) and the unique challenges faced by families with undiagnosed genetic conditions. She sheds light on the emotional journey of navigating uncertainties and seeking support within the SWAN community.
- Sharing Hope: Claudia shares her personal journey of hope and resilience, offering encouragement and support to other families navigating similar paths. She emphasises the importance of finding strength in community, advocacy, and celebrating the unique strengths of undiagnosed children.
Note: Learn more about Swan UK and Undiagnosed Children's Day by visiting their website at http://www.geneticalliance.org.uk/swanuk
Follow Nicole on www.instagram.com/conversationswithasendmum for exclusive peeks to weekly episodes. Please do send feedback and rate this podcast to help it reach those who would benefit.
Check out our sponsor The Super Sensory Squad who support kids in understanding the eight sensory systems and emotional regulation using their penguin squad at: www.thesupersensorysquad.com and www.instagram.com/thesupersensorysquad
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