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Contenu fourni par Leslie Krongold, Ed.D. and Leslie@GlassHalfFull.online (Leslie Krongold. Tout le contenu du podcast, y compris les épisodes, les graphiques et les descriptions de podcast, est téléchargé et fourni directement par Leslie Krongold, Ed.D. and Leslie@GlassHalfFull.online (Leslie Krongold ou son partenaire de plateforme de podcast. Si vous pensez que quelqu'un utilise votre œuvre protégée sans votre autorisation, vous pouvez suivre le processus décrit ici https://fr.player.fm/legal.
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International Myotonic Dystrophy Awareness Day

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Manage episode 341214053 series 1148431
Contenu fourni par Leslie Krongold, Ed.D. and Leslie@GlassHalfFull.online (Leslie Krongold. Tout le contenu du podcast, y compris les épisodes, les graphiques et les descriptions de podcast, est téléchargé et fourni directement par Leslie Krongold, Ed.D. and Leslie@GlassHalfFull.online (Leslie Krongold ou son partenaire de plateforme de podcast. Si vous pensez que quelqu'un utilise votre œuvre protégée sans votre autorisation, vous pouvez suivre le processus décrit ici https://fr.player.fm/legal.

September 15th is International Myotonic Dystrophy Awareness Day. To learn more about helping educate and advocate for Myotonic Dystrophy visit the Muscular Dystrophy Association or Myotonic Dystrophy Foundation.

The purpose of this Awareness Day is to garner the attention of the wider general public, policy makers, regulators, biopharmaceutical representatives, researchers, health care professionals, and anyone with an interest in changing the future of myotonic dystrophy. Raising awareness of myotonic dystrophy will help improve service provision, basic research, drug development, and policymaking related to the disease. Increased funding for myotonic dystrophy research will improve health outcomes, reduce disability, and increase life expectancy for individuals living with the disease, and holds great promise for helping individuals with diseases with similar genetic bases, such as Fragile X syndrome and Huntington’s disease.

To learn about the different types of myotonic dystrophy, visit this NORD webpage.

In addition to this podcast host/producer who lives with Myotonic Dystrophy Type 1, the following podcast episodes have featured guests living with DM1, DM2, or caregivers in a DM family:

Food = Medicine

Passion and Motivation to Move through the Hard Stuff

Working with Wounded Warriors

Music Gives Me a Peace Bubble

Salute to Caregivers

Stories of Healing with Essential Oils

  continue reading

107 episodes

Artwork
iconPartager
 
Manage episode 341214053 series 1148431
Contenu fourni par Leslie Krongold, Ed.D. and Leslie@GlassHalfFull.online (Leslie Krongold. Tout le contenu du podcast, y compris les épisodes, les graphiques et les descriptions de podcast, est téléchargé et fourni directement par Leslie Krongold, Ed.D. and Leslie@GlassHalfFull.online (Leslie Krongold ou son partenaire de plateforme de podcast. Si vous pensez que quelqu'un utilise votre œuvre protégée sans votre autorisation, vous pouvez suivre le processus décrit ici https://fr.player.fm/legal.

September 15th is International Myotonic Dystrophy Awareness Day. To learn more about helping educate and advocate for Myotonic Dystrophy visit the Muscular Dystrophy Association or Myotonic Dystrophy Foundation.

The purpose of this Awareness Day is to garner the attention of the wider general public, policy makers, regulators, biopharmaceutical representatives, researchers, health care professionals, and anyone with an interest in changing the future of myotonic dystrophy. Raising awareness of myotonic dystrophy will help improve service provision, basic research, drug development, and policymaking related to the disease. Increased funding for myotonic dystrophy research will improve health outcomes, reduce disability, and increase life expectancy for individuals living with the disease, and holds great promise for helping individuals with diseases with similar genetic bases, such as Fragile X syndrome and Huntington’s disease.

To learn about the different types of myotonic dystrophy, visit this NORD webpage.

In addition to this podcast host/producer who lives with Myotonic Dystrophy Type 1, the following podcast episodes have featured guests living with DM1, DM2, or caregivers in a DM family:

Food = Medicine

Passion and Motivation to Move through the Hard Stuff

Working with Wounded Warriors

Music Gives Me a Peace Bubble

Salute to Caregivers

Stories of Healing with Essential Oils

  continue reading

107 episodes

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